today we attended the Down Syndrome Awareness Walk in milwaukee wisconsin ( our first), i wanted to say a special thanks to our team of 41 and to everyone who made donations on behalf of max, i told myself that i wouldn't cry when i was thanking everyone today for being at the walk... but sure enough i did... ha. so i wasn't able to say everything i wanted to so here goes, it means so much to me today to have our family and friends attend this walk with us, it shows the love and support we all have for max, and that means so, so very much to nick and i. you made this day for us special. so thank you again for being a part of it. we love you all:)
my baby boy is ten months today:) wow,... ten months, where dose all of this time go?
max has done some pretty amazing things so far:) he is starting to see his hands, we are working on waving, he is picking up his toys and putting them in his mouth. he sits for hours, sleeping curled up... with his behind in the air:) "talking" more and more, rolls...scoots...not sure what to call it... but he gets around to get his sisters toys!!! he reaches out to people when they ask him if he wants to come up by them... and now just started yesterday to turn away if he doesn't, he is eating two times a day, gets upset when someone takes a toy from him, drops a toy... looks and wonders where it went,... and of course is always a joy to be around:)
i was just thinking maybe if you are not a mother a child with a special need you might be thinking... well i guess those are all good things (that's what i would have thought before max)... but they are more then good they are great!!! they are amazing.
for example when max first got mad at lilly for taking his toy, he yelled and grabbed it back, lilly thought it was funny so she did it again, and max did it again. it was a little game between the two of them!!! i was so happy i got a tears in my eyes, that's what siblings do. it was so great to see them interacting... him playing with his sister,...this is something i took for granted with lilly... but now i guess i can add plays with his sister to the list of amazing things:) so back to my little man turning ten months. congrats to my max, you have come so far in ten months, i can't wait to see what i get to write for your eleven:)
back when i did a post on our story, i was told about Ellie's Gift its a blog that Megan Snow and her husband started, the goal of this blog is to get the word out there that Down syndrome is a good thing. they hope to let other parents facing this know that they are not alone. anyways, i was told about this blog by Down syndrome New Mama. so i emailed them about our story, about our gift, max. i just heard back that they add our story to their blog:) i think it a great thing to be a part of, and was thinking if anyone else wanted to be a part of it also they should check it out and email them your story.
over the weekend me and the kids had a nice weekend up north again, it was an unplanned spur of the moment weekend with grandma and grandpa, nick had to stay home and work:(
i was able to finally finish lilly and max's bird houses (my mom and dad have one for every grandchild) i drew lily pads with a lily flower for lilly's of course, that's grandpa's nickname for lilly (lily pad). and it took me a while to think of the right thing to put on max's, but all of a sudden i remembered back to a wonderful story. it was a link from the blog A Walk In Lily's Gardenyou should take the time to read it if you haven't already. its a loving story of a father and son, oh, and then you will understand why i chose a bumblebee for max:)
over the weekend we were up at my families cottage on white potato lake, we had such a good time, the weather was beautiful. we swam, went for bike rides, and even sat by the fire:) sorry i posted a ton of pictures.
grandma and max
max in the swing lilly helping push
lilly on the gator
max pooped out
noah and max
can you see me?
noah and max
fun on the trampoline
wasn't ready to let go.
daddy got ya lilly:)
lets go again:)
late night by the fire
max was the only little one still up:)
evan and lilly
max sleeping on the boat, don't worry he woke up and played in the water (i just didn't get any pictures)
back last october when max was first born, i didn't really know that much about Ds and didn't know anyone else who had it, so of course i went i online. i wasn't ready to talk in person with anyone so to find another mom on the internet was so great, valerie was great support, i feel even though she was a stranger at first, she became a very close friend and helped me through a very tough time in my life. so any ways i just found out she started her very own blog, please check it out. http://emmysmom-daysofourlives.blogspot.com/
i am a mother to three of the most wonderful children lilly (1-23-07) and max (11-20-08), and grey
(9-27-10). on the day my son max was born with Down Syndrome our lives changed in so many wonderful ways, we are blessed to have lilly, max and grey... not a day goes by that i don't thank God that i have them. this blog is about our everyday life. welcome:)